2007 Conference
Round Table Report [pdf]
Expanding the Horizons of Carcinoid and NeuroEndocrine Patients
June 8 - 10, 2007
Feedback
Thank you so much for organizing this Seminar, I was just thrilled to be there! I wish I would have been able to talk personally with everyone, and hear everyone's stories, because that to me was the most valuable reason for attending this Seminar. I feel like I am no longer alone in my quest to understand and to be understood. I was so touched and felt on the verge of tears alot this weekend, to see the strength and determination of not only the patients suffering from Carciniod Cancer, but of the husbands, wives, sisters, mothers, fathers and friends. The commitment shown by the Specialists at this Seminar was something that I have never witnessed in all my 30 yrs as a practising RN. I felt that they spoke to everyone there, as equals, in their quest to detect, diagnose, treat and cure these slow growing, but devastating neuroendocrine tumours. I now feel energized and committed to promote awareness of Carciniod Cancer, here in the Okanagan Valley, starting right here in Vernon, with putting it out there, in my community, that I would like to start a local Support Group.The Board of Directors, Carcinoid-NeuroEndocrine Tumour Society-Canada, acknowledges and thanks the Seminar Task Force for an outstanding Seminar.
Joanne Ferguson
Dear Maureen, I would like to thank you for your hard work and organization during Patient/Doctor CNETS Seminar. I also want to thank all other individuals who helped you to have this event very, very successful. I feel honored being participant of this so important and great symposium.
Sincerely,
Mira with husband Mladen Ninkovic
It was a great conference and I hope we will continue to evolve with the energy I felt on that last day.
Morley Dore
Many thanks go to Nadia Rosati-Ciszek for being the inspiration for our Seminar and for checking out Hotels for us. Also for arranging with a travel agent to have us buy air tickets to bring Dr Granberg and his wife from Sweden. Many thanks go to Patrick Sandes for giving his invaluable help and time to write a necessary grant proposal to Novartis Pharmaceuticals, and biographies of the presenting doctors. Patrick also created and wrote up a comprehensive definition of Carcinoid Cancer and NeuroEndocrine Tumours and Cancers for our thank you cards. Many thanks go to Julia Stinton for her unflagging energy and drive for the cause. Julia worked extremely hard creating the seminar website. Julia did innumerable other things for this Conference and in general acted as the glue which allowed everything to stick together meaningfully. Silvia Steinhilber is owed a big thank you for her hard work projecting costs and making sure that we could pull this Seminar off financially. Silvia was also available to register people, making sure that everyone who wanted to come was on the list. She also was instrumental in getting Dr Ralph Wong of Winnipeg to speak at the Seminar. Nycky Thevenet impressed us tremendously with her enthusiasm and zeal. We watched in awe as Nycky faxed our invitation to 250 doctors, and designed and ordered CNETS-Canada merchandise. Nycky worked very hard during the seminar. Many thanks go to Barbara Bell for her excellent work reaching out to the nursing profession. Much appreciation goes to Barb for meeting with the Canadian Cancer Society’s Cancer Information Service and forging a relationship with them. Thanks also for the beautiful afghan you crocheted and donated to our Silent Auction. We had some new members join our Task Force as time grew short and specific tasks needed to be done. A vote of thanks go to Diane Rosati, Frania Banks, and Agnes Basemera, for their wonderful help with both fundraising andbinteresting ideas. Special thanks go to Kelly Stinton for her hard work organizing many of the details, including registering participants. A special thank you goes to Carolynn Ioannoni for her excellent work as the Master of Ceremonies.
Maureen Coleman
Maureen, you did a wonderful job in organizing this event and of course all the Committee as well, considering the short time period you had to organize all that. And now I am so very proud to wear the ribbon and the carcinoid pin.
Diane Rosati
I'd like to send a very big Thank You to all of the Physicians, Researchers and Healthcare Workers who took time out of their lives to come to the Seminar and both educate and learn. We have a marvelous group of caring individuals that watch out for us, guide us, and take care of us when we most need it. With such a firm basis for care, NeuroEndocrine patients and their supporters have reason for hope.
Julia Stinton
A BIG, BIG, BIG thank you to Maureen Coleman. Without you none of this would have happened. Applause! Applause!
Sherry Fox
Some highlights were just meeting other noids, learning how they coped with problems re diagnosis and treatment, and the think tank discussion on Sunday. It was great talking with everyone.
Linda Jones
The seminar really was incredible. What a great opportunity to get together with people in-the-know and pick their brains. I too especially liked the way Patrick Sandes set up the Sunday discussions. It was great to have direct feedback from the doctors, about the ins and outs of doctor/patient education etc. I found it empowering to discuss "What will we do now?" We have a choice, to either sit back and be patient patients, or to gain strength in numbers and make a difference. At the moment, since carcinoid NETS is a rare disease, we are getting the short end of the stick. As I learned from the seminar, there are people out there who want to make a difference, and any little step counts! Thanks to Maureen, and fellow Task Force members, and to Julia Stinton's 15 year old daughter Kelly, who worked for two days with us voluntarily! What a great team! Also, it was great to meet so many noids. Having something in common gave us the foundation to solid friendships.
Nycky Thevenet